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savingdogs
Queen Filksinger
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I'm afraid this will get boring, but I guess I should explain, I have something called Meniere's disease, which is actually quite common but effects people differently. It is a chemical imbalance in the inner ear. It causes ringing in the ears, a feeling of fullness, bouts of extreme vertigo and fluctuating hearing loss. All the women in my family have it, but I have it the worst. It is also related to migraines, I have those too. But I've been slowly worsening over 25 years whereas it kind of goes away or burns out in some people, not me. It is also usually one-sided and I'm one of the fortunate people for whom it is bilateral. When it went bilateral, I started having temporary deafness because I've lost all usable hearing on side number one. Now I sometimes have about 20 percent and sometimes have around 80 percent (like now) on the second side. When I have 20 percent I cannot understand normal speech anymore, so it really varies and my life changes profoundly.
But actually the worst symptom is the dizziness, it is like no other torture invented and is truly horrible. I can stand being deaf but vertigo is not tolerable. Having both come and go is mostly frustrating and often depressing. Now that I can hear again, my life normalizes.....but it could leave again the same day or be like this for a couple months, I never know. This year I could hear on my birthday but not the month before or the month after. So I can't, for instance, buy tickets to a concert right now because in a few weeks I wouldn't be able to hear again. Unless I didn't buy the ticket...then of course I would hear great.
I would become a candidate for coclear implants as soon as I finish losing the hearing on side number two. My doctor actually says that when this happens I will hear better than I hear right now. But, with coclear implants you cannot hear music anymore. I love music so much, I want to postpone my coclear implant as long as possible, hoping to take advantage of as many of these hearing "windows" that I may be lucky enough to get....does that make sense? I do have a different type of implant, it is called a BAHA, which helps me hear on my deafer side by using bone conduction to the better side. Unfortunately this device increases my likelihood of me getting vertigo and I only wear it occasionally. But for about five years it was quite helpful, before my condition went bilateral. They also keep trying to do a surgery on me which would kill the vertigo but I could lose what hearing I have left and I keep refusing. I do have a wonderful state-of-the-art Godlike doctor whom I love and who is tops in the nation treating me, he writes text books and follow me for insurance only (I think I have been in his books!) I think because I am an extreme challenge, much worse than most Meniere's patients although better than a few. I have allergies to everything (bees, wheat, eggs, caffeine, cane sugar, mold, dust, pollen, trees, animals and lots of medications). This is probably why my Meniere's is so bad.
You will also hear me mention my diet restrictions which are part of the treatment for this, as allergies and sodium and certain other foods trigger vertigo attacks. The most notable for this forum is I'm allergic to my eggs from my chickens and I think my ducks too. And I eat low sodium. I actually think that my hearing improved because I swore off aspartame two weeks ago, and want to talk to my doctor about it. But weird things like that effect me.
Now that everyone knows more than they ever wanted to about my health issues, I will just refer them to this page of my journal if they are curious!
But you cannot imagine how liberating it is to HEAR when you have not been able to for months and months. I actually made three phone calls today!!!!!!!!!!!! That was an amazing feat for me. I don't even have a cell phone anymore, had to borrow one! But those of you who hear perfectly, cherish that gift! And your ears also balance you, which is more important than you could ever imagine.
So those of you who toughed it out through this boring explaination of what is wrong with me, thanks for listening!
But actually the worst symptom is the dizziness, it is like no other torture invented and is truly horrible. I can stand being deaf but vertigo is not tolerable. Having both come and go is mostly frustrating and often depressing. Now that I can hear again, my life normalizes.....but it could leave again the same day or be like this for a couple months, I never know. This year I could hear on my birthday but not the month before or the month after. So I can't, for instance, buy tickets to a concert right now because in a few weeks I wouldn't be able to hear again. Unless I didn't buy the ticket...then of course I would hear great.
I would become a candidate for coclear implants as soon as I finish losing the hearing on side number two. My doctor actually says that when this happens I will hear better than I hear right now. But, with coclear implants you cannot hear music anymore. I love music so much, I want to postpone my coclear implant as long as possible, hoping to take advantage of as many of these hearing "windows" that I may be lucky enough to get....does that make sense? I do have a different type of implant, it is called a BAHA, which helps me hear on my deafer side by using bone conduction to the better side. Unfortunately this device increases my likelihood of me getting vertigo and I only wear it occasionally. But for about five years it was quite helpful, before my condition went bilateral. They also keep trying to do a surgery on me which would kill the vertigo but I could lose what hearing I have left and I keep refusing. I do have a wonderful state-of-the-art Godlike doctor whom I love and who is tops in the nation treating me, he writes text books and follow me for insurance only (I think I have been in his books!) I think because I am an extreme challenge, much worse than most Meniere's patients although better than a few. I have allergies to everything (bees, wheat, eggs, caffeine, cane sugar, mold, dust, pollen, trees, animals and lots of medications). This is probably why my Meniere's is so bad.
You will also hear me mention my diet restrictions which are part of the treatment for this, as allergies and sodium and certain other foods trigger vertigo attacks. The most notable for this forum is I'm allergic to my eggs from my chickens and I think my ducks too. And I eat low sodium. I actually think that my hearing improved because I swore off aspartame two weeks ago, and want to talk to my doctor about it. But weird things like that effect me.
Now that everyone knows more than they ever wanted to about my health issues, I will just refer them to this page of my journal if they are curious!
But you cannot imagine how liberating it is to HEAR when you have not been able to for months and months. I actually made three phone calls today!!!!!!!!!!!! That was an amazing feat for me. I don't even have a cell phone anymore, had to borrow one! But those of you who hear perfectly, cherish that gift! And your ears also balance you, which is more important than you could ever imagine.
So those of you who toughed it out through this boring explaination of what is wrong with me, thanks for listening!