Daydreaming while waiting impatiently!

murphysranch

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I just learned a whole bunch today. Things I had no idea about. Thanks for sharing.

Niece has Ulcerative Colitis - for over 10 years now and she'll be turning 32 in June. She takes a shot of Humira every Sunday. It keeps her alive, but its very difficult.

I can read that your condition also is very difficult. Long hug from me to you.
 

tortoise

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I wish there had been remote options when I was young, including online college courses while in high school. I would have kicked butt.
Same! I dropped out of college 4x. couldn't hack the whole sitting upright thing for 12 weeks in a row. I could make it about 8 weeks and then crap out.
 

FarmerJamie

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I have IBS. MCAS, and PCOS. (Other stuff too, but the glutathione is most relevant to these) I have genetic variants so my body doesn't make enough glutathione or use it as efficiently as normal people.
Wife has yet to be officially diagnosed with MCAS. I forgot how the doctor worded it, but strongly hinted she did. Double negative if i remember correctly, I can't say you don't have it? Something like that, because one of her conditions prevented the positive test?
 

tortoise

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Wife has yet to be officially diagnosed with MCAS. I forgot how the doctor worded it, but strongly hinted she did. Double negative if i remember correctly, I can't say you don't have it? Something like that, because one of her conditions prevented the positive test?
It's incredibly difficult to get it diagnoses with labwork because most labs don't have the equipment to process the samples correctly. My doctor was SO frustrated with this that she did not use labwork to diagnose. And many doctors aren't familiar enough with it to feel comfortable making a conclusive diagnosis. The situation is really a mess.

Thank goodness for over the counter treatments. But if someone really needs, cromolyn sodium for example, and needs insurance to cover it, it's a really big problem to not have that diagnosis. :(

My doctor used this to diagnose: https://www.wjgnet.com/2218-6204/full/v3/i1/WJH-3-1-g004.htm She would enter "presumed" diagnosis, and then finalize it based on response to treatment.
 

tortoise

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I made one last stop at the grocery store. I was out of carrots and broccoli. 😱 Kids begged for brussel sprouts, so I bought 2#. I double-bagged them before I put them in the fridge so the smell doesn't bother DH as much. LOL! Bananas, mandarins, mangoes, carrots, broccoli, brussel sprouts, blueberries. Pretty sure we'll survive now. (Remember when the last grocery stop before a storm was for milk and bread?! :gig )

Then we stopped at the library to get a big box of books and some kid's movies. If school is out on Friday it's going to be a looong weekend.
 

flowerbug

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Same! I dropped out of college 4x. couldn't hack the whole sitting upright thing for 12 weeks in a row. I could make it about 8 weeks and then crap out.

i have a hard time with classroom settings but do ok working through things on my own. the hard part is that i'm sure i miss some things by not having more formal presentations, but that's just how it goes...

i'm glad though that i can do what i'm able now, and the biggest improvement is no pain (no sitting).

i also just had a tough time in college because of some other things (working full-time and sometimes overtime while also taking a full schedule...) it was a wild ride. :)
 
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