Lemierre's Syndrome~Fusobacterium Endocarditis~message to pass on pg 4

noobiechickenlady

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We already knew about the defect (God bless sonagraphers!) & that surgery would be needed one day, just not quite so soon. He wouldn't stop crying one day, and he was never like that. Always an easy baby, happy, playful & calm. He had started going into congestive heart failure when I got him to the Dr.

BBH's I think was much more traumatic. Her babygirl still has issues, too.
 

big brown horse

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noobiechickenlady said:
We already knew about the defect (God bless sonagraphers!) & that surgery would be needed one day, just not quite so soon. He wouldn't stop crying one day, and he was never like that. Always an easy baby, happy, playful & calm. He had started going into congestive heart failure when I got him to the Dr.

BBH's I think was much more traumatic. Her babygirl still has issues, too.
:hugs Wow Noobie! My dd did have surgery but they did it by entering her body through an artery in her groin. Not open heart like your little one. She was in ICU overnight and released the next day. Plus she was 4 years old and quite accustom to being in the hospital and around drs. I would have FREAKED if she was a tiny baby!! :hugs
 

noobiechickenlady

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Wow... well, yeah. It was pretty traumatic. Also had to repair a Duodenal web: think kinked water hose, only it's the intestines. No pooping! That was at a week old. The after results of the heart surgery were what brought me to tears, I was cool until I saw him after surgery. If it had to be done, well, it had to be done.
DS was born pale, the av canal causes a mixing of the oxygenated & spent blood inside the heart, so he was never pink, always tired, pale & couldn't gain any weight. Until I went to see him right after surgery. He went from pale & skinny to plump & pink literally in 6 hours.

We spent the first 3 weeks of his life in NICU, plus a couple more weeks after heart surgery. I'd like to give a shout out to Blair E. Batson children's hospital. Made life less of a living H E you know.

Now? It's like he was never ill, other than the scars. Okay, yall have me leaking a little bit now, remembering...
 

big brown horse

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Amazing Noobie! I remember after her surgery she went from breathing like Darth Vadar to quite as a mouse. I thought she died she was so quiet. All within a few hours after her heart surgery.
 

Dace

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Wow! We have had it extremely easy and smooth here. Bless you both for being such strong mommas to go thru all of that with your little ones!
 

me&thegals

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sylvie said:
Thanks for the heads up.
I'm one of those who always wants to know "why". I hate the way we aren't given information or educated by doctors and nurses unless we badger them or ask for answers after the fact.
Still, it doesn't matter how many questions I ask; I always miss the important one. Now I end with "is there another question that I should be asking you?"
Me, too! I'm the patient that drives them batty by asking about 15 questions. I like your final question! The prob is that many doctors have only 10 min per patient. I choose the ones who are known for going WAY over time with their patients and bring a good book for the wait.

BBH: Thanks for this unusual and important information. I didn't realize this was a possibility! I've read lately that gum infections are related to heart disease. It's amazing to me how oral health is related to the rest of the body's health. Best wishes for your friend.
 
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