Denim Deb
More Precious than Rubies
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Hope it helps.
Savingdogs-Saving the chickens
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savingdogs
Queen Filksinger
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Denim Deb said:
Did you mean to smack me, Deb?
i_am2bz
Lovin' The Homestead
Heeheehee...I've gotten those icons mixed up before, too.savingdogs said:Denim Deb said:
Did you mean to smack me, Deb?
Sorry SD, I see my post wasn't clear; that's what I meant - if the cochlear implant doesn't let you listen to music, maybe technology will change by the time you have that done...?
But vertigo is NOT fun (ask me how I know), & falling is dangerous...so...what else can you do?
Bubblingbrooks
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Good for you SD. Not hearing can be livable, but vertigo makes for misery.
So I am assuming from what you wrote, that the surgery has to be redone every 1-3 years?
So I am assuming from what you wrote, that the surgery has to be redone every 1-3 years?
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savingdogs
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I've gotten the smack and the hug one mixed up before and smacked someone who needed a hug on accident too, that is why I thought it was funny.
Yes, BB, I will probably need to re-do the surgery in a few years. They don't propose it that way, but my doctor knows that I know all about this, we have had numerous discussions about it. They never know with my disease, sometimes it goes away on its own, sometimes it has remissions and flares, and they don't really understand it. It is possible in three years the vertigo stage will be ended.
The shunt just relieves a symptom, it isn't a cure. There are many causes of this problem is why they can't really figure it out, it is similar to migraine headaches, but the symptoms are different.
And Abifae, I WOULD love it if Denim Deb could smack my extra ear fluid out of my ear, it feels all clogged up (as I'm sure she knows).
Yes, BB, I will probably need to re-do the surgery in a few years. They don't propose it that way, but my doctor knows that I know all about this, we have had numerous discussions about it. They never know with my disease, sometimes it goes away on its own, sometimes it has remissions and flares, and they don't really understand it. It is possible in three years the vertigo stage will be ended.
The shunt just relieves a symptom, it isn't a cure. There are many causes of this problem is why they can't really figure it out, it is similar to migraine headaches, but the symptoms are different.
And Abifae, I WOULD love it if Denim Deb could smack my extra ear fluid out of my ear, it feels all clogged up (as I'm sure she knows).
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savingdogs
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I actually don't know sign language...just a few signs.
I'm gonna wake up with packing in my "good" ear and I'll have to leave it in there, so I will be essentially stone deaf for awhile after the surgery.
I'm gonna wake up with packing in my "good" ear and I'll have to leave it in there, so I will be essentially stone deaf for awhile after the surgery.
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savingdogs
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I agree, but I don't have a way of getting to them. I fiddle around with books and online info, but no one speaks sign TO me, and I can talk to people really well, my mouth works fine. Okay now I deserve the smack..... But seriously I haven't lost my ability to speak, I tend to talk over people because I don't hear them talking to anyone.
I have to get my family to learn sign and that is a different story. My daughter is the only one who is encouraging about this, she is working on learning and teaching my granddaughter, but in the meantime, they giggle ALL at my mistakes. I come off really different in person, I can be more "myself" here on the forum. We are all using the same form of communication. But I'm trying to use lip-reading to understand a spoken language and use my brain to fill-in-the-blank. My brain gets overworked just attempting this. So I tend to ignore a lot of conversations going on around me and don't really understand things that happen even when I'm right there in the room.
I DO hear sounds but can't make out what they are, but you use sound for lots of things besides communication. There are a lot of vibrations in a room that you can feel as well that I use. I can feel that someone is flushing the toilet in the next room or I feel the rush of air from when the door opens, or the slight shaking of the house when someone shuts the front door, the dogs running down the hall. But I can't tell the cat is meowing unless I look her in the face. I can hear the rooster crow if I'm standing next to it, and YES, I can hear a nubian goat yelling for dinner. That doesn't make speech any easier to discern. But I can use the pitch of sound to tell WHO is speaking, so at this point, any small amount of sound is helpful. It is very tiring being this way.
We are going to a picnic tomorrow and I don't know whether to look forward or not. I used to LOVE parties and crowds and now my experience is so different, I tend to get depressed because I anticipate one thing and experience another. I wouldn't wish my disease on anyone. The only good thing I can say about it at this point is that I'm on disability, so I don't have to try to somehow earn a living this way, I would fail.
But seriously I haven't lost my ability to speak, I tend to talk over people because I don't hear them talking to anyone. I have to get my family to learn sign and that is a different story. My daughter is the only one who is encouraging about this, she is working on learning and teaching my granddaughter, but in the meantime, they giggle ALL at my mistakes. I come off really different in person, I can be more "myself" here on the forum. We are all using the same form of communication. But I'm trying to use lip-reading to understand a spoken language and use my brain to fill-in-the-blank. My brain gets overworked just attempting this. So I tend to ignore a lot of conversations going on around me and don't really understand things that happen even when I'm right there in the room.
I DO hear sounds but can't make out what they are, but you use sound for lots of things besides communication. There are a lot of vibrations in a room that you can feel as well that I use. I can feel that someone is flushing the toilet in the next room or I feel the rush of air from when the door opens, or the slight shaking of the house when someone shuts the front door, the dogs running down the hall. But I can't tell the cat is meowing unless I look her in the face. I can hear the rooster crow if I'm standing next to it, and YES, I can hear a nubian goat yelling for dinner. That doesn't make speech any easier to discern. But I can use the pitch of sound to tell WHO is speaking, so at this point, any small amount of sound is helpful. It is very tiring being this way.
We are going to a picnic tomorrow and I don't know whether to look forward or not. I used to LOVE parties and crowds and now my experience is so different, I tend to get depressed because I anticipate one thing and experience another. I wouldn't wish my disease on anyone. The only good thing I can say about it at this point is that I'm on disability, so I don't have to try to somehow earn a living this way, I would fail.
