Abifae - Ciao Babies!

[Wifezilla]

As the mom of an autistic kid, you would never believe how incredibly pissed off I am my son was robbed of an independent life because I listened to health officials who told me to eat low fat, cut calories and stay out of the sun.

 

[big brown horse]

As the mom of an autistic kid, you would never believe how incredibly pissed off I am my son was robbed of an independent life because I listened to health officials who told me to eat low fat, cut calories and stay out of the sun.

I kinda know how you feel, Sam was misdiagnosed by 7 different pediatritions, 2 ENTs, 2 allergists as having asthma. When she really had a growth in her throat...HELLO ENTs!! Now she has to live with a lower i.q--sleep apnea caused brain damage. She is also a large girl b/c of the inhaled sterriods she needlessly took all her life.

On top of it, the growth in her throat and all the other internal inflammation was caused by diet...one that I was told was healthy.

 

[abifae]

You are also TOTALLY RIGHT!

It's a burden I figured you'd know EXACTLY what I'm talking about!!!

lack of good diet and sunlight can cause many mentall inlleses, not only autism

Exactly!

Auntie.... And you are considered nutters for being SOOO low carb insistent!

On top of it, the growth in her throat and all the other internal inflammation was caused by diet...one that I was told was healthy.

My ... well everything... was so utterly neglected that I had seizures and severe autism and inflammation and girl issues... all because no one cared to get anything checked. If some magic genius fixed my diet in early childhood, I'd have such a different life.

I don't begrudge what I am, or who I am, but it's sometimes frustrating to know I can't do a lot of things I might have otherwise done.

 

[AnnaRaven]

My ... well everything... was so utterly neglected that I had seizures and severe autism and inflammation and girl issues... all because no one cared to get anything checked. If some magic genius fixed my diet in early childhood, I'd have such a different life.

I don't begrudge what I am, or who I am, but it's sometimes frustrating to know I can't do a lot of things I might have otherwise done.

Sorry to hear that your early years were so awful though. Girls just slip through the cracks more because we don't make a fuss like the boys, imho.

As for you having a different life, maybe. Bad diets etc can exacerbate a lot of problems, and autists tend to be more sensitive to things in general, including diet.

My kids were raised on pretty good diets - lots of protein and good fats. Some carbs but much of those were things like homemade multi-grain bread, or brown rice, etc. Lots of veggies, many home-grown. Lots of sunshine and none of that evil sunblock stuff. (Also, plenty of chances to play in the dirt, go camping, etc.)

DS is still autistic. There are things that are still problems for him. Might have been *worse* problems if he'd had a lousy diet, but he's still autistic.

So yeah.

My personal theory is that it's a multi-allele situation, that has some adaptive benefits but also, when the wrong genes combine and/or are triggered, can have many deficits as well. I liken it to sickle-cell anemia - one allele can provide malaria protection, two can kill you.

ETA: Wakefield should be hung by the neck until dead for causing the many deaths he's caused by his unscrupulous fraud.

 

[noobiechickenlady]

Abi, surely you don't talk at the theater?

I have to completely agree. BTW, my friend said thank you from the bottom of her heart for your advice. The fat didn't scare her

*patpat* Soft kitty, warm kitty...

 

[abifae]

Oh, I know I'd still be autistic. There are just times I find it very annoying I wasn't able to go to school LOL. But I'm doing really good now. Getting my CNA and I can get all of a nursing degree paid for by jobs. Not my dream career but it beats the hell out of call centers!!

And the parts I most remember about my childhood are GREAT memories. I just don't know if they happened. *laughing*

Which is probably where all the annoyance is coming from. I'm trying to root out a niche for myself in this here-now but I have no background in this here-now so it's really hard to do. Most people have background markers, so they can look back and see things, and I don't, and it makes it hard to see where I am now. I only exist right now. To do anything else invites so much chaos I disintegrate into the schizophrenia.

My personal theory is that it's a multi-allele situation, that has some adaptive benefits but also, when the wrong genes combine and/or are triggered, can have many deficits as well.

I agree! I think people hoping to simplify disease just by knowing the genomes is hilarious. Genes are so much more complicated than that. Plus there are SO many factors. Diet, environment, stress of either parent, time of year and weather... can all impact which genes express when. So it's not a simple matter.

ETA: Wakefield should be hung by the neck until dead for causing the many deaths he's caused by his unscrupulous fraud.

THAT!

Hee hee Noobie!! NO I do NOT talk at the theater. *beams*

Woot!! Glad she was good with the fats. Thank you for the song. Annoyed is a TYPE of sick...

 

[Wifezilla]

Can't stop the signal, eh folks?


Even if I did have a proper vitamin D level and a descent diet while pregnant, there is still a chance Max would have been autistic, but I do believe his functioning level would be much higher.

He is 21 now and functions at about the level of a 3 year old. I would be much less tired and stressed if he was like his Fairy God Mother abi...or even closer to 10! a 6'3" 275lb 3 year old is a force of destruction many can not comprehend

The genetics for all sorts of brain cooties run through both my family and hubby's. ESPECIALLY hubby's! Abi and I have talked about this before. I have yet to meet an autistic kid that didn't have a parent, aunt, uncle or grandparent with brain cooties.

Talking to other moms, I am amazed at how many have one parent with some "spectrum traits" that never got a dx. One girl I went to a dance class with had an aspie son. After us talking over the years about this topic one day said "Holy crap! My husband is bipolar!!!" Turns out he had issues for years but they thought it was ptsd due to things that happened in the military. While he may well have developed ptsd, there was untreated, undx'd bp at the core.

 

[abifae]

I just realized you can change the size of the typing area and see more of your message at once. *clever monkey*

Spectrum covers SUCH a large number of people!! I think it's needs to be redone on a multiple axis chart and where people fall in it would be much more interesting. What axises would you use?

I would have:
*the developmental delay axis
*the flexibility of thought axis
*degree of overstimulation axis
*communication/articulation axis
*relevancy (degree of free association vs staying on topic) axis
*hallucination/delusion axis
*mood stability/appropriateness axis
*engagement axis (attachment to this world)

I'm happy because that is 8. I run all my internal thoughts on 8 axis bases hee hee. Like, every friend is its own category, because they all fall on a different place on the 8 axis friendometer. *laughs*

eta: random link Gut flora and fat usage.

 

[abifae]

So clinicals are so far so good I was gone all day so Amira missed me a lot. I missed her too.

So when I got home I fed her and she didn't leave her shoulder perch til she ate and then she hid. And I said "Amira, I'm only still awake to give you snuggles, and if you don't come out and I go to bed, and you keep me up all night cuz you didn't snuggle now, I'll be mad". And she came running out and dove into my lap purring...

Apparently "snuggle" is one of her words

So she knows "step up" "down" "come" "stop" "quiet (actually i snap twice)" "lie down" "kiss kiss (she puts her mouth in my mouth or licks my lip LOL)" "food" "nails (she either then gives me a paw or runs away)" and "snuggle". She also knows "get up" refers to me getting up. She therefore flops over on her side and increases her weight exponentially if I say "get up".

I think Pudding might recognize her name. *grins*

So I had an insight today. My dad was very very protective. All the neglect things... He took me to doctors for anything not of the brain. Sore throats, allergies, asthma (I SO don't have - it was heart murmur)... If it was my BRAIN he hid me away. I think he was honestly convinced they'd institutionalize me and he'd lose me.

There is a definite and distinct pattern there. So seizures, choking, flapping, meltdowns, leaving school, learning issues, not speaking.... that all meant I'd be taken away.

Strep throat, spring allergies, bronchitis, throwing up... Doctors and staying home sick etc.

*beams*

Also, my friend and I resolved two mysteries:

One: why the co-student hates me. I'm teachers pet without trying and she's a suck up and it didn't work. And also on the first day, it's possible my reassuring her after she said she wants to work with babies because she hates death with "babies die too" wasn't reassuring.

Two: flirting is a test to see what a relationship might be and is evidence of being an attention whore. *beams* I don't use it to manipulate. I have other means. So I flirt with all animals and the rain and clouds and trees and everyone I see. Like a little kid. We decided that I don't flirt with sexual intent the way an adult would because I'm autistic and actually still a child in that way. Neat huh?

That's my day.

*curtsies*

 

[Henrietta23]

Neat insights!