What do you know about ADD?

Ldychef2k

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In 1996, both my daughter and I were diagnosed with ADD. She had hyperactivity as well, which is uncommon for women. She tested 80% probability, I tested 97%.

My 10 y/o granddaughter has ADD. It was not difficult to make that determination, as both her parents and her grandmother carry the diagnosis.

I chose not to be medicated because over the years I have learned coping skills and tools that work quite well. I am in a situation (working at home) where I have complete freedom to indulge my impulses without fear of reprisal. I get more work done in a day with my impulse control problems than you might expect!

My daughter chose to be medicated when she was first diagnosed. As a teen, she had trouble with compliance so we discontinued her meds. After a disastrous first marriage with an ADHD/bipolar man, she chose to restart them, and wears a patch every day. She has since completed her Bachelor's, is working on her Master's in counseling, works full time, is married to a pastor who recently earned his doctorate, and after she gets her Masters, she plans to earn one as well. She functions VERY well.

My DGD's story may be more to the point. She is in fifth grade. Until 4th grade, her grades were marginal, and her ability to adapt to the classroom environment was minimal at best. You know that movie "UP" and the ADD dog who gets distracted by squirrels? That was her. She would be on task, and something would catch the corner of her eye and then all of her energy and attention would bounce to that stimulus. And then back again. And then to something else.

She, too, drew pictures in class, and so on. She just didn't hear things the teacher said, because her brain was doing a dozen other things at once and she could not prioritize her stimuli. Kind of like someone with their finger on the remote, changing channels without stopping. Once she DID find something to land on, it was not the appropriate thing, and hence she drew pictures or stared out the window and made up stories about what was happening outside. Or tapped her foot or moved around the class, or anything that happened to be the brain's landing point.

Unless you have ADD, you cannot even imagine what that is like. Everything is vying for your attention at the same level of intensity and your brain doesn't know how to choose the appropriate stimulus.

At the beginning of fourth grade, my daughter took her to the pediatrician and they discussed, with written teacher input, my DGD's behavior and family history. (My parents both have many indicators of ADD, and it is an inherited disorder for the most part.) They decided to put her on a very low dose patch. She puts it on in the morning at about 7 AM, and by 8 AM she is focused. It comes off at 3 and by 4 or 5 she has no effect at all. She does not wear it on vacations or on weekends. It is solely there for school.

How does it work? She stays on task, is not disruptive, and most significantly of all, is able to focus on the appropriate things in class.

The standardized testing they do every year showed unbelievable improvement. She went from below grade level to at or significantly above grade level in every subject. Her reading comprehension went from grade 1.8 to grade 4.9 in one year. Her self esteem is sky high and she routinely gets acknowledged as a high achiever in her class.

As far as establishing a diagnosis, I am not sure that all the testing matters, unless you are trying to get an IEP (independent education plan, which is for moderately to severely affected children with all manner of issues). And I am not sure it matters how the diagnosis is made. In my daughter's case, she just went to the doctor armed with her insights and observations and the doctor agreed to a trial of the patch.

Speaking from experience, kids with ADD know they are not the same as other kids. They get in trouble a lot, which causes no end of emotional damage. That is where my DGD was heading, and since she is a completely girly princess with a kind and gentle heart and a love for God and others, we just could not allow it to happen. So, even though I was not 100% on board with medicating kids, my daughter gave it a try. As you can see above, the results speak for themselves.

So after all this writing, I guess my input would be: If you think your kid needs help with the school environment, give medication a try. Read about the ins and outs, as my daughter did. DGD's med caused a decreased appetite at first, and she has some "down time" where she kind of crashes when the patch comes off. Had DD not read about those things and understood what was happening, and gave DGD the insights she needed as well, she might not have continued with the meds until those side effects lessened.

The end result is what is important. For my DGD, that was success in school, and the feeling that she is finally "like everybody else". You have to evaluate your own goals, of course, because no two families and certainly no two kids are alike !

This is my experience, and I hope it helps.
 

me&thegals

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That is very well put and helpful, ldychf2k! We share job descriptions, right now :) It works for me, too. I love a job where I can transcribe for 15 min, then go cut up squash, do laundry, then come transcribe, go check on the bees, get the mail and start a load of laundry, then do more transcription, etc.

Here's my big block on this:

1. I really dislike medication. I don't trust its safety and I rarely trust that it is needed. We just don't use it around this household.

2. I really don't want to medicate for something I'm still not convinced exists (please, no offense anyone!! It's not that I disbelieve *you*, just a huge paradigm shift possibly going on here) or at leasts exists for my child.

I like this patch idea better, somehow.


Ldychef--Can you share more of your coping skills during your school years and those of your daughter?
 

Ldychef2k

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I just went back and read the first post you made, which clarified for me why this is a difficult thing for you. If I understand correctly, both the school and you have concerns of varying intensity about your son's behavior in class. (You are right, BTW, to be proud of his creativity ! Some of the greatest people in history had ADD, based on what was written about their behaviors and characteristics. You can search online for "famous people with ADD" and you might be surprised.)

Anyway, you are not sure if you believe ADD is an actual disorder. I understand that. There are a lot of completely subjective disorders (fibromyalgia for one) which are thought not to be "real". ADD is an "invisible" condition. There is no blood test or x-ray that can prove it exists. All there is to go on is behavior, which is also why so many kids are diagnosed incorrectly. I have seen kids get the diagnosis because their parents can't handle them, or the teacher and the child don't get along. So of course there is going to be controversy about it.

You are doing great things to help him create organization in his life. That's exactly the kind of skill he needs. It may take longer for him to take resopnsibility for that organization than other kids, but it is a wonderful tool. We used white boards and charts and schedules extensively when my DD was growing up. It kept both of us successful.

No one wants something to be wrong with their kids. It's scary. And especially if it is being suggested that your kid has something wrong with him that you dont' think exists. That's gotta be horrible.

I guess that's why I would want to give him a short trial of medication. It's not going to hurt him, and if it works then you have a fairly high probability that he has ADD. Be aware of the side effects, and if he can't tolerate them after a decent period of time has passed, then stop.

My daughter found that talking to DGD about what it was like to be in her head was HUGELY helpful. Because DD is very well informed on the disorder, she was able to translate an eight year old's language and understand that when she was saying, for example, "Butterflies are more fun than soccer", that was an issue with distractability. In most cases, the kid doesn't know any other "normal" than their own xperience, so they don't really know that their distractabilty and impulse control are not the norm. Talking to them, you can figure out what their experience is.

I am getting too long winded and I so totally apolgoize. I am very passionate about ADD identification and the skills one needs to live an effective life with that diagnosis on board. I did it without medication, but I have a lot of baggage and problems with feeling like I am always a failure, as a result of having to figure things out as a kid, without modern psychology and certainly without any basic parental or teacher understanding. I was "lazy", didn't "apply myself", a slacker, a liar, and a failure...all before high school. I am almost nuclear in my desire for kids not to feel that way.

Again, sorry for the massive number of words.
 

me&thegals

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sylvie said:
I toured the Hershey Montessori School in Huntsburg, Ohio for the National Solar and Alternative Energy Tour. It was a working farm that employed solar, geothermal and just about everything imaginable.
The kids guided us, explained innovations, farming techniques, sustainability, profitability and class schedules. I was blown away by these kids and those who made this school a reality. Any question we adults had were answered completely, including engineering and business principles.
http://www.youtube.com/watch?v=Ms1ei9m2p_8

It may be that these kids need to move about using muscles in order to learn and focus. Perhaps contacting a Montessori liaison could guide your decision with information on their approach; to enable you to apply the concepts to your son while keeping him in his school.
I can't view that with my dinosaur computer on dial-up, but just your description sounds so exciting! I know he loves to learn and has the capacity for memory. Yesterday at breakfast he was telling me about angler fish, how they use their head thingies as a lure for their prey, how the females are so many cm long, the males 10 times smaller. This child loves to learn. He totally gets into the things at school that are really interesting, like a closed electrical circuit to light a lightbulb, the whole unit on bobsled racing, the time their class built an entire model community with props and art work...

This is the way we've taught our kids their whole lives! It's the way parents teach. We don't sit there with worksheets and workbooks teaching them their colors and ABCs and whatever else we teach them. We sing it, color it, explore it, touch it, hear it... I get that classrooms are geared towards 18+ different little minds, but part of me gets kind of angry that we take these amazing, curious, pliable minds and plunk them in desks and chairs with workbooks, worksheets and homework at the end of every day.

Yet, most kids do okay anyway.
 

me&thegals

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Ldychef2k said:
I just went back and read the first post you made, which clarified for me why this is a difficult thing for you. If I understand correctly, both the school and you have concerns of varying intensity about your son's behavior in class. (You are right, BTW, to be proud of his creativity ! Some of the greatest people in history had ADD, based on what was written about their behaviors and characteristics. You can search online for "famous people with ADD" and you might be surprised.)

Anyway, you are not sure if you believe ADD is an actual disorder. I understand that. There are a lot of completely subjective disorders (fibromyalgia for one) which are thought not to be "real". ADD is an "invisible" condition. There is no blood test or x-ray that can prove it exists. All there is to go on is behavior, which is also why so many kids are diagnosed incorrectly. I have seen kids get the diagnosis because their parents can't handle them, or the teacher and the child don't get along. So of course there is going to be controversy about it.

You are doing great things to help him create organization in his life. That's exactly the kind of skill he needs. It may take longer for him to take resopnsibility for that organization than other kids, but it is a wonderful tool. We used white boards and charts and schedules extensively when my DD was growing up. It kept both of us successful.

No one wants something to be wrong with their kids. It's scary. And especially if it is being suggested that your kid has something wrong with him that you dont' think exists. That's gotta be horrible.

I guess that's why I would want to give him a short trial of medication. It's not going to hurt him, and if it works then you have a fairly high probability that he has ADD. Be aware of the side effects, and if he can't tolerate them after a decent period of time has passed, then stop.

My daughter found that talking to DGD about what it was like to be in her head was HUGELY helpful. Because DD is very well informed on the disorder, she was able to translate an eight year old's language and understand that when she was saying, for example, "Butterflies are more fun than soccer", that was an issue with distractability. In most cases, the kid doesn't know any other "normal" than their own xperience, so they don't really know that their distractabilty and impulse control are not the norm. Talking to them, you can figure out what their experience is.

I am getting too long winded and I so totally apolgoize. I am very passionate about ADD identification and the skills one needs to live an effective life with that diagnosis on board. I did it without medication, but I have a lot of baggage and problems with feeling like I am always a failure, as a result of having to figure things out as a kid, without modern psychology and certainly without any basic parental or teacher understanding. I was "lazy", didn't "apply myself", a slacker, a liar, and a failure...all before high school. I am almost nuclear in my desire for kids not to feel that way.

Again, sorry for the massive number of words.
Oh, here goes the tugging again :D. You all are so gracious and forgiving of my constant flip-flopping. Thank you.

Your post is very passionate and obviously spoken from someone who has been inside this difficulty.

It also brings up one more fear of mine: What if we take a creative child and brain (like you are/were) and basically tell them they are not *ok* just the way they are. Maybe it's really the system (public school) that is not okay. But we tell them that because they cannot function well in that system, *they* are not okay and need to be medicated. However kindly and wisely a parent finds to phrase that, I guarantee a child *gets it* that HE is medicated while nobody else he knows is.

OTOH, what if you leave that child in that system, don't change to meet his learning style, and he feels like a constant failure in that system since it doesn't speak to his strengths, interests and talents?

Yet, your granddaughter doesn't seem to suffer any stigma from that. And it sounds like she was heading for way more esteem problems without the medication. And that's where my son is right now. He is not happy during school. His smiles are infrequent, his frustration is huge, his temper is quick and his patience is minimal. He is *not* perfect during summer, but he is a much, much different child.

Aaaarrrgggh! More thinking out loud. This is like a major brainstorming session, with you and all your amazing input. Eventually, eventually, I will have to come to some sort of understanding.
 

TanksHill

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I just did a bit of back reading and I am thankful I took the time. I lost track of this thread for a bit.

This Friday is my Student Study Team meeting at my sons school. I will be meeting with the psychologist, counselor, class room teacher as well as the principal. Oh and me. I am already feeling a bit overwhelmed and out numbered. I did the check list a couple weeks ago. I imagine his teacher and special ed teacher did the same.

Me&thegals I have a strong feeling that your description of your meeting is a complete foreshadowing of what I am going to go through. I think that these people I have turned to for help are now going to be more in favor of medicating my son. Not something I ever thought necessary. I transferred him to public school in hopes of having him tested for learning issues and developing an IEP that could help.

I almost feel like the whole thing has backfired. I guess what I plan to do is go and listen. Take notes and then evaluate it all at the end.

The thing that gets me is that the work my son is doing is about 6 months behind his previous school. They also have this new way of teaching math that is crazy and redundant. Everything is taught in word problems that make simple logic very jumbled. I also have friends volunteering in the class. They say my son is not any more inattentive than the next kid. I developed a checklist for the teacher to make notes on. It travels home daily with my son. He has gone from being re directed 10 to 12 times a day to 0 to 5. I think he really is just acting his age.

I guess I just need to gather myself up and here what they have to say. I almost wish I had an advocate to take with me. Someone familiar with the system and what their doing. It would give me a bit more confidence with the situation.

gina
 

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me&thegals said:
Teacher noted 75% attentiveness, psychiatrist 60% attentiveness (3 sessions for psych.).

ETA: I thought, "Dang, 75%? Wow! That's great! I wouldn't do so well in the typical classroom!!" She also showed me doodling he had been doing while he was supposed to be paying attention. There was an intricate maze that I wanted to bring home and stick on the fridge! Another encapsulated his worksheet with an enormous carrot--way to go! The third was a funny little man made from a large eraser, 2 smaller pencil-top erasers and a paperclip. Again, cool!
As an educator I agree with you. Remember those kids that I taught in the Alt school? If they missed one dose they would be at 10 or 20 percent inattentiveness!

me&thegals said:
ETA, again: I would NOT tell my child these were cool and creative. I would tell him in class I expect him to be paying attention. In those private parent moments we have, though, my internal mom was thinking they were pretty interesting :D
Again I totally agree. I think he is bored to tears!

me&thegals said:
1. Is there ADD or not?? Physicians, teachers and psychiatrists all seem to believe so. These are also the people who benefit from this diagnosis either monetarily or through a calmer classroom. ...all the people who diagnose it benefit from the diagnosis.

How do we figure out if the child is actually depressed, bored, understimulated, overwhelmed, overtired, undernourished, anxious, daydreaming?

What if public schools just stink?

What if many children are dying a slow mental death in public schools, but they do the work anyway? What if some children are so, so bored that they simply don't give a rip and don't bother to try very hard?

Lets ponder this a while. I think you are REALLY on to something!

me&thegals said:
4. What if this is just bad parenting? ... What if the benefits of good school work (good grades, my approval) don't matter that much either? What if at age 9 (duh, of course!) he doesn't even get WHY eventually, 10 years from now, good grades might benefit his life?
In the first place if you care enough to even ASK these questions BAD parenting is not an option. I am sure a 9 year old does not see the BIG picture. All they know is how they feel from day to day... AND it must not feel good ... for what ever reason.

me&thegals said:
5. What if we don't find ways to give him the skills he needs? How long do you let a child be beaten down in the system he is in?
NOW is the time to stop.

Looking back on my son's situation I wish we had done things MUCH differently. Allow me to use my "looking back" insight to help you.

With my son he was NOT disruptive in class but would not do the work. He was often inattentive and like I think I said before it was "suggested that he was Learning Disabled and had severe ADD". As an adult he is now slightly depressed and has some anxiety issues. In the middle were several years of teachers telling him he was basically dumb and lazy and many years of small failures in the classroom. He DOES have a Learning Disability ... he is dysgraphic. Through OUTSIDE the school testing we discovered this. We also discovered he is very mentally gifted.

WE DID NOT put him on medication as they (the school) suggested.

Public schools are NOT set up IN ANY WAY to handle kids at either end of the learning spectrum only those main stream masses. Our public school system did have a gifted program in place and when they moved GEEK son to that program it DID relieve a LOT of the pressure on him. However he NEVER received any of the supports that the children's hospital where his dysgraphia was diagnosed suggested.

1 . He was supposed to receive compensation and modified assignments where written work was required. Verbal or demonstration assignments when possible instead.

2. He was supposed to have access to a computer to do his work. (Since he COULD type but has extreme problems writing by hand) A handful of teachers DID provide this opportunity.

3. He was supposed to have a scribe during test situations.

Those were the main things. They were even written in an Individual Education Profile and agreed upon by the school. He never got the benefit however and had we been more active on his behalf we probably should has sued the district.

Only when he got to high school did a lot of the problems and pressures decrease. There he was more in charge of his fate. He got to choose electives that excited and pleased him.

What did HE choose to learn - my lazy inattentive child that needed to be medicate - when HE got the chance?

Higher math. Electricity. He took up the viola. He took hands on classes.

His junior and senior year he really soared. He no longer went to that normal public high school. HE opted to take Vocational Training in computers. He was bussed to the high school in the morning, switched busses and went to VO TECH only coming back long enough to eat lunch and then back he went to what he LOVES!

Vo Tech gave him what he needed. A place to succeed. They even provided competitive outlets through Skills USA and other corporate sponsored competitions.

He placed second and third IN THE NATION in some of those competitions, sometimes competing with continuing education ADULTS!

He felt so little connection with the public school system in the end, he wouldn't even graduate with his class. Just got the important papers and walked out the door.

I am not bragging here, just giving you a real example.

Looking back ... I wish we had gotten him OUT of the public school system as soon as we first saw the signs. He was probably the ideal candidate for homeschooling.

As a side note: He was in PRIVATE Christian school until a change in administration forced us to move him in the 5 th grade. He had done well in that setting. I can't imagine how bad it would have been if he had started in the public school setting.

Further side notes: I have to other older daughters. D1 fought her way through public schools even though she also is dysgraphic. She did not have great academic success, but her personal successes were plenty. She thrives on challenge! This is the same D1 who is now a very successful vet tech and has even work in the ER setting and went into the profession "mustang" earning her credits and credentials without formal school training. D2 ATE UP public school, always made excellent grades, now holds a BS degree and is running currently totally wild and often outside the law. Hmm.

me&thegals said:
6. What if he really DOES have an actual medical condition that could be fixed by medication? What if in all my agonizing over whether it exists or not, it is just the same as my not treating potential diabetes and his mental health falls further and further?
If you change his conditions, move him to another situation, another school or home school or what ever and things stay the same - then the condition is probably internal. I would give the kid a chance.

That said I also realize why that is so hard. We simply could NOT afford for me to quit work and home school our son. That is why we tried the route we did. I think many mistakes were made.
 

Ldychef2k

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Okay, you asked for it.

Personally, my coping skills in elementary school came about as a result of punishment, shame, and humiliation. I learned that if I didn't want to be confined to my bedroom for the weekend with a pot to pee in and a loaf of bread and some water, I better learn how to organize myself. The one thing that helped was listening to the radio while I did my homework. (Which was not allowed.) Much of what I accomplished was based on fear, and shear force of will. Remember, I am almost 60, so this was a completely different era.

As I have gained insight on the diagnosis, I describe it as a good angel on one shoulder and a bad angel on the other, the latter trying to distract me from my task. I found that if I had some noise in the room, the bad angel would keep busy with that, and the good angel and I could get things done.

Kind of like transcribing for 15 minutes, cutting up squash, doing laundry, and transcribing again, etc. You have actually described perfectly what it is like to have ADD, except that each task has come about as an offshoot of the other. You start one thing, see something else that needs doing...do it...and then see something else. Rinse and repeat.

In middle school, I took a summer course on how to study. It helped, but not for long. I made charts and graphs, set up schedules, etc. But it only lasted until the first distraction came along. I had no support, other than "It's about time...don't screw this up too." Back then, it was all about obedience and achievement.

I failed some classes, took them again, failed all math classes (dyscalculia...like dyslexia, but with numbers....learning disabilities are common with ADDers...Einstein did't read until he was like 9 or 10, something like that). I had the disadvantage of a lot of abuse because I was not able to pay attention.

It was not until I went away to college (that's the school I was talking about mostly) that I met my potential. That's because going away, living in a dorm, having an active life, those were all high energy, adventurous things that satisfied my bad angel, kept him busy, and I was able to focus. I earned a 3.8 GPA in college. High school, 2.9. When you read about ADD you find that we crave highly stimulating situations.

Okay, I know that you hate medicine, and a lot of people do, especially natural food and remedy folks. I have strong feelings about that, based on the death of a dear friend from cancer as he tried to treat it nutritionally. I better not comment. That's a personal decision. I have a friend with profound ADD who treats it nutritionally. She thinks she is doing great, but those who observe her disagree. She is completely paralyzed in her daily functioning.

I understand that you are not able to accept ADD as a valid diagnosis. I can't convince you, and I won't try. The only thing I can tell you is that the medication which treats ADD restores the proper balance of the synapses of the brain, causing the nerves to fire appropriately and thus relieving the symptoms. Because the treatment works, for me that proves the disorder is valid. Squirrley, eh ?

The patch is much better than the pills. With the pill, you have to wait for it to wear off, and with the patch you are in control of when it stops working. It's really helpful.

I think I described the charts and white boards in the previous post. Those were really the very best way we kept organized. She actually has a 3' x 5' white board at her house now that organizes the entire family. Be flexible to a point with schedules. With DGD, for example, she has to read 30 minutes a day, but she gets to pick which 30 minutes. If it isn't started before 30 minutes prior to bedtime, there are consequences.

The reward system was a bust for us because there was so much failure. That's the worst thing you can do to an ADD kid -- give them the chance to fail at something that a non ADDer thinks ought to be a cinch. It takes a lot longer to teach organizational skills to an ADDer.

The mainstay of ADD adaptive learning is a coach. You can find out about that and other things here: http://www.chadd.org/ Most coaching is for adults, but an adult can certainly be the coach of a child.

I cannot even begin to know how you feel about your child having a disorder that you do not believe is authentic, and then to not be able to accept the very best solution (meds) on top of that...that's got to be like living in the middle of a cyclone. I know, though, because of the immense love you have for him, that you will stick to this until it works out one way or another. If you have to try something you don't approve of, and he benefits from it, maybe that would make it easier.

I need to go, but I want to encourage you that while this is a difficult subject for so many people, the bottom line is helping your child learn the skills needed to be a success in life, whether he has ADD or not.




me&thegals said:
That is very well put and helpful, ldychf2k! We share job descriptions, right now :) It works for me, too. I love a job where I can transcribe for 15 min, then go cut up squash, do laundry, then come transcribe, go check on the bees, get the mail and start a load of laundry, then do more transcription, etc.

Here's my big block on this:

1. I really dislike medication. I don't trust its safety and I rarely trust that it is needed. We just don't use it around this household.

2. I really don't want to medicate for something I'm still not convinced exists (please, no offense anyone!! It's not that I disbelieve *you*, just a huge paradigm shift possibly going on here) or at leasts exists for my child.

I like this patch idea better, somehow.


Ldychef--Can you share more of your coping skills during your school years and those of your daughter?
 

me&thegals

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Tankshill--How old is your son?

In my meeting with the teacher and psychologist, I wanted to keep asking (and did a couple times), "And other children are not doing this?" I mean, really? Other kids are not daydreaming, picking at scabs, making doodles, staring blankly at their papers? Now if he were shouting, poking, rocking continuously, swearing at the teacher or other such things, I might be more willing to accept this as out of the norm.

Seriously, I'm not sure whether to be distressed that my son is not paying attention or give him a big hug for finding a way to entertain himself quietly and creatively during very dull moments in life! Which has ALWAYS been his enormous skill. He can make fun out of ANYthing. Seriously, the child rarely used toys since he can find a way to entertain himself in any place, any time, any circumstance. I think I can honestly say I have never heard the words "I am bored" out of his mouth.

Back to testing and assessing, I also have a huge problem with how subjective everything is. I have a science education. So, when I fill out a survey asking "How often does your child do this, that and the other thing?" I have a really big problem with the subjectivity of that. What if I am in a bad mood? What if I am not getting enough sleep? What if my child had a really bad week? What if I am a completely anal parent who thinks "Quite often!" is once every 10 months while the next parent to fill out the survey thinks "Quite often!" is once every 10 seconds?

Ditto for the teacher's subjective responses.

Plus, now that my child has been targeted for observation, they ARE going to notice the behaviors they are looking for.

Take that same survey to every single parent in the classroom, do that same observation for every single student in the classroom, and now we are starting to reach slightly more objectivity.

Except we really aren't. This is still ONE classroom in ONE tiny school in one state in one country, a country which happens to value hard work and dilgence far more than creativity. There are way, way too many variables to take into consideration.

Yet, I also understand that teachers have had many, many students. My son's teacher has been teaching for 30 years. She doesn't send in every other child for ADD testing. And this behavior, or lack of it, has been going on for years, not just when it is rainy, or he is overtired, or the stars are not in perfect alignment.

Tankshill, I wish I had something to offer you besides commiseration. My very best wishes for you in the meeting. I think as parents we need to not roll over and play dead. We need to find ways to get answers to hard questions from the very people who may not be ready/willing to shift their paradigms. And then be willing to shift our own paradigms when the evidence is incontrovertible.

Keep us posted!
 

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Ldychef

I personally KNOW many people just like you. Intelligent, VERY wonderful people who ABSOLUTELY need those meds. It CAN make the difference between success and failure for those people. When I was at the Alternative school my eyes were truly opened. Many of those kids would have been able to be a success in the mainstream setting if their med issues had been addressed sooner or with more consistency. (Sadly many of the kids that I saw had parents too involved in themselves to care about their child's conditions. :rant The successful ones were still in the mainstream. :) )

Thanks for sharing with those who don't get it out there HOW HARD it is to live like that.

Thank God you are better able now and were able to help YOUR child to be a success. :thumbsup
 
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