pinkfox
Super Self-Sufficient
i take trileptal, its officially for my bi-polar disordr but is consideed an anti-seizure med...as far as the dr is concerend im "under control" (he doesnt feel the need to revoke my drivers lisence because i do get warnings and know when to avoid driving) so for all medical purposes im "under control" but i tend to have about 1 week a month where ill have a cluster of them...usually 3-5 days where ill have 10-15 in a day, then it seems to stop again...unless im under alot of stress or getting sick, then they come much more frequently.
in terms of daily life, i took to keeping a journal very early on about how i feel before, after ect, and kept dates, i started to see patterns and recognize the warning signs...i do get auras about an hour or so before hand where things sound a little off, colors seem not quite right as if someones tweeked with the contrast or messed with the hues, and i generally feel "off" kinda heady and spacy..i know if i wake up in a morning and things feel like im on some kind of mild hallucanagen im going to have an off day LOL and just stay home...if im having a day where i have even the slightest doubt i stay home...
ruby does seem to recognize them too and gives me warning if theres doubt in my mind theres never any in hers...
it does kind of make one a bit of a recluse (and im failry certian its a large contributing factor to my mild agoraphobia...but at the same time even on a relay bad day i only loose a fw mins of my day to "day dreaming" as my mum still calls it...i honestly dont notice during an absence and if theres noone around to tell me "you were staring off into space again" i have no real clue, i generally go out come back and think..."what was i saying?!" or "what was i doing again" so in some ways its majorly disruptive and yet in others its no different than someone who tends to space out or get distracted easily lol.
i think thats why absence seizures can be completly overlooked by some...there considered a minor annoyance at most...
generally touch seems to help break a "stare off" for me...someone comes along and puts there hand on me, my 20second black out turns into a 10 second black out...
since hes already undr a drs care and on meds specifically for seiures though i cant se why they wouldnt be able to get this under control, as a whole im told it tends to respnd well to most seizure medication., for me its just a case of stick to the dosage that helps with the mood swings or tweek it up and hope it fixes the seizures and not do more harm than good to the bipolar...the seizures are much easier for me to deal with than the rapic cycling so i stick with what works lol.
in terms of daily life, i took to keeping a journal very early on about how i feel before, after ect, and kept dates, i started to see patterns and recognize the warning signs...i do get auras about an hour or so before hand where things sound a little off, colors seem not quite right as if someones tweeked with the contrast or messed with the hues, and i generally feel "off" kinda heady and spacy..i know if i wake up in a morning and things feel like im on some kind of mild hallucanagen im going to have an off day LOL and just stay home...if im having a day where i have even the slightest doubt i stay home...
ruby does seem to recognize them too and gives me warning if theres doubt in my mind theres never any in hers...
it does kind of make one a bit of a recluse (and im failry certian its a large contributing factor to my mild agoraphobia...but at the same time even on a relay bad day i only loose a fw mins of my day to "day dreaming" as my mum still calls it...i honestly dont notice during an absence and if theres noone around to tell me "you were staring off into space again" i have no real clue, i generally go out come back and think..."what was i saying?!" or "what was i doing again" so in some ways its majorly disruptive and yet in others its no different than someone who tends to space out or get distracted easily lol.
i think thats why absence seizures can be completly overlooked by some...there considered a minor annoyance at most...
generally touch seems to help break a "stare off" for me...someone comes along and puts there hand on me, my 20second black out turns into a 10 second black out...
since hes already undr a drs care and on meds specifically for seiures though i cant se why they wouldnt be able to get this under control, as a whole im told it tends to respnd well to most seizure medication., for me its just a case of stick to the dosage that helps with the mood swings or tweek it up and hope it fixes the seizures and not do more harm than good to the bipolar...the seizures are much easier for me to deal with than the rapic cycling so i stick with what works lol.